Tuesday, April 10, 2012

The 'trial run' of Belinostat

We've just returned home from an overnight at UH......amazing how tiring 30 +/- hours in a hospital can be.  John had a "trial run" with the new clinical trial drug.  This is done so they can monitor him and take regular blood work, to be sure it will be well tolerated. The good news is all went well.....no nausea or adverse side effects and he was able to get a fairly good night's sleep.

The infusion schedule for this drug is a week of treatment (Monday-Friday) followed by 2 weeks off, with blood being drawn every Monday, even during the "off" weeks.  Treatments will begin next Monday (4/16) and we will, once again, become residents of the Hope Lodge during the treatment weeks.

As the infusion time of this drug is relatively short (about 1 hr....including the anti-nausea pre-meds), and John seems to tolerate it well, we're hoping to take advantage of the warmer weather in Cleveland this time of year and take in more of the museums, parks, and a couple Indians games during our time there.  We're going to have a lot of time on our hands....can't spend it just sitting around the lodge.

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